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I am a mother of 4 grown children. I have one child that has been diagnosed with Schwachman diamond syndrome. She has been in and out of hospitals all her life. I have experience with breathing treatments, feeding tubes, special diets, reflux, giving shots daily and much more. I also know the feelings associated with having a chronically sick child. Exhaustion, overwhelmed, guilt and all the up's and down's and great love you have for a child that is ill. Show me your routine and I will learn and be a great caregiver for your child. Safety, nurturing and loving are important to me.
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