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How should we handle bullying due to NF?

User
March 23, 2015

I can't believe I even have to write about this because it's so sad and really tragic that my daughter has to experience this. She's been bullied by other girls lately because of a few visible signs of her NF, and I'm absolutely heartbroken. She's talked to a FEW select people about her NF, but it's something she hasn't been comfortable about opening up about with NF. I'm not really sure how to handle this situation, my daughter still doesn't want to open up to people about her NF, especially if she's being made fun of - but it's a sticky situation because people judge when they don't understand. I guess I'm just caught in a weird spot of protecting the privacy my daughter wants and helping her in this situation.

Answers
User
March 23, 2015

Well im kind of going through the same thing with my daughter she has nf1 and has a tumor on her brain and spine that causes her to walk with a limp. She does wear braces on her legs because of it and kids make fun of her. I just tell her no matter what she's beautiful and not to worry about what people think. That's a good question and i just don't have a good answer. As parents we don't want our children to have to go through that.

User in Eureka, CA
March 23, 2015

My son isn't even three, and I already worry about how to tell his teachers and school mates. I think they should know and the kids be coached about what would amount to bullying. So far, he has a brace on one leg for a bowed tibia and fractured fibula, and he may be showing signs of what could become neurofibromas on his face. He is absolutely beautiful and has a winning personality, but I fear that, as things get worse, kids may pick on him and destroy his amazing confidence. He is showing language delays, which may also give him trouble when he starts school.

User
March 23, 2015

As hard as it is tell her to try her best to ignore ignorance . I went through the same things as a child . Her true friends will Stand by her . I would go to school and speak with the principal . She is being bullied and she should not have to put up with It.

User in McIntosh, FL
March 23, 2015

I had the same issue with my son. He went to a private school and kids that he thought were his friends started bullying him in 5th grade. It broke my heart but I also believe and told him that true friends will not treat him that way. He is now in public school and has made a very close friend that I am so grateful for. He has always been awkward socially and has speech issues. It is very hard to watch your child go thru all the extra medical issues and then have to deal with stuff like bullying on top of it.

My son gets bullied by twin girls because he walks slower and runs slower..It is so sad to me..He also still has troubles with certain sounds and letters...All we can do is be there for them..Talk to the school, have a meeting with the principal, parents, and children

User in Eureka, CA
March 24, 2015

my son is not in school yet, but I have had worries about the same thing. I plan to involve his teachers and principals to make sure they stay involved and make sure the schools children are taught about bullying and children being different. my husband doesn't seem to think it will be an issue but I have concerns

User in Eureka, CA
March 24, 2015

I hope you insist that the teachers and principal to do some teaching about bullying and children who are different everybody's different in some way, and children need to be taught to be understanding.

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User
March 23, 2015

This would be a hard thing to deal with I found out I had it at age 13 I really did not have a lot of students that did bullying I know if it was my child I would put them in a Christian school if that can't be done talk to the school and see if they can have a assembly and you and other parents will special needs could talk to the students and let them know what is going on .Good luck prayers with you and your child may I ask their age my son also has it he is 17 had mild case has no external tumors yet.

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User
March 23, 2015

My son doesn't have that problem normally,  there was s n incident recently that infuriated me as a parent and human. Each situation is unique and different.

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