we adoped our daughter knowing about NF1 and up until now we have never had any problems MRIs every year since she was 4 years old but now , my daughter Jennifer has an inoperable tumor which is (benign) in her stomach wrapped around her orgins , we started treatment (chemo) about a month ago which we had to stop due to side effects, so we waited about a 3 weeks and started again with a lower dose, we go for a scan on july 21st to Moffitt cancer hospital , she is 27 years old , I need all the prayers i can get, praying that it shrinks so maybe we can think of surgery , we have to have a positive outlook , thank you all for listening to my story. Charlotte DeRosa
