How to Handle the 4 Most Challenging Autism Behaviors

boy crying

Does your child scream if he can't wear his favorite shoes? Does he enjoy fondling material of certain textures without regard for where or on whom that fabric may be located? Does he fear the toilet, the market, the dentist?

This was part of a post about The Thinking Person's Guide to Autism left by Shannon Des Roches Rosa, mom to an 11-year-old son with autism, as well as a high-profile advocate and educator for autism awareness.

If so, take note -- he's trying to tell you how he feels and what he needs from you: behavior as communication, she continues.

"Pay attention to cues -- what is your child trying to tell you?" says Lynette Fraga, PhD, VP of Early Care and Education and Special Populations at Care.com. "Parents and care providers have to be incredibly responsive and sensitive to children with autism regarding their behaviors," she says, imparting a necessary vigilance and hyper-awareness on the part of the parent.

Amanda Friedman, co-owner and director of Emerge & See Education Center, agrees, adding, "We need to become translators of our children's behaviors."

After speaking with several child development experts and parents of kids with autism, we highlighted the four most challenging autism behaviors and provide advice on how to best handle them.

  1. Sleep Disruption
    Sleep can be tough for kids with autism, as they tend to have highly sensitive nervous systems. Even the slightest variation in their day can affect their sleep for the night.

    "We have to be extremely careful not to give Leo anything that has any caffeine," says Des Roches Rosa, who lives in Redwood City, Calif. "He can't have any chocolate after 3pm or he will be up all night. He's a very active, athletic boy, so we make sure he gets a lot of exercise during the day. If not, he also doesn't sleep."

    Many parents find that creating a nocturnal oasis helps a lot. Eileen Riley-Hall, author of "Parenting Girls on the Autism Spectrum," says to think sensory-wise: room-darkening shades, a white noise machine, weighted blankets. "Basically anything you can do to make sleep more appealing," suggests the mother of two teenage girls on the spectrum.

    But beware the common pitfall of unwittingly enabling their irregular sleeping habits, says Friedman. "A lot of parents feel that when their child wakes up in the middle of the night they have to get him something to eat, turn on the TV, and immediately cater to the fact that he stirred or woke up as opposed to bringing him or her back to bed. It's just a matter of teaching their bodies that it's still nighttime and we're not going to start the day just because you woke up."

    One way to do this, Friedman suggests, is through visual supports like the TEACCH program method: "Show them a picture of a clock and a picture of Mom and Dad and say, 'You can come into our room when your clock matches this clock.'"

    Autism Speaks offers free downloadable toolkits, one of which is all about sleep.

  2. Food Sensitivity
    "Kids with autism are historically tremendously picky and selective and limited in what they will eat," says Riley-Hall. "It's a sensory thing; you have to have lots of trial and error, certain textures, certain foods." When her girls were younger-they are now 13 and 11-she didn't make them eat anything they didn't want to eat: "For me it's more important for mealtime be pleasurable. Everybody eats more if they feel relaxed, so in the past I have made them something different to eat and then we all sat down together to eat."

    Alison Berkley, co-owner and co-director of Emerge & See Education Center talks about a tactic learned from Susan Roberts, an autism educator and consultant with a specialty in picky eaters.

    Getting your child to eat a variety of foods starts with expanding their tolerance level: "It doesn't even need to be that the child eats a new food but that they tolerate it being on the table," says Berkley. "At the next meal they tolerate it being on the plate and then they tolerate just touching it. Then you can slowly expand their repertoire of food."

    She recommends a slow, gentle and positive approach "because you want them to take their fear and anxiety around food and transform it into a sense of empowerment and a sense of control."

  3. Meltdowns
    Meltdowns happen, that's a given. What matters is how prepared you are and how you can minimize their occurrence.

    "Don't put your child in over his or her head," warns author Riley-Hall, who is also an English teacher at an inclusive high school in upstate New York. "I have parents I talk to who say, 'Well, everyone is going to Six Flags for the day," and I'm like, 'Well, you might not be able to do that.' If you know it's a situation where it's going to be really long or really difficult, you're just sort of setting them up. You have to accept that there are limitations that come with having a child with autism."

    With a tantrum, the child is still in control, they want to get their own way, explains Riley-Hall. With a meltdown, they can't calm down and at that point either they've gotten themselves so upset or so overwhelmed they're no longer in control of the situation. "And they can be difficult to judge," she says. "It's really important not to always give in to meltdowns because you're afraid of them. The basic thing is to hold them and calm them and wait until they can calm down themselves. I know some kids have really egregious meltdowns, so it's important not to put them in a situation where you think they may have one but if they do, just keep them safe and soothe them in whatever way you know works until they can recover."

    If a tantrum happens in public and unwanted eyes (and comments) are directed your way, you can curtail further scrutiny simply by handing out pre-made wallet-size cards that say things like, "My child has autism," with a website listed for them to learn more. You can get these through various autism organizations or make your own.

  4. Aggressive Behavior
    Aggressive and self-injurious behaviors are fairly common in children with autism, says Des Roches Rosa. When her son Leo acts aggressively, it's usually due to sensory overload or frustration with his inability to communicate his needs effectively. "Most times, when people better understand the basis for the aggressive or self-injurious behavior and then accommodate or support the person with autism, things can improve dramatically," she says.

    Des Roches Rosa swears by data tracking: "We keep scrupulous notes about Leo and his behaviors and all the factors in his day." Having done this for years, De Roches Rosa incorporates notes his day: what he eats, how much he sleeps, even whether his father is on a business trip. "We can actually identify seasonal behavioral arcs. So when something is wrong, we can go back and figure it out."

    Certain things can set Leo off, says Des Roches Rosa. "Like a change in barometric pressure, which can really affect his sinuses. When he's acting out there's usually a reason for it and in almost all cases we can find out what it is."

    But when Leo went through an extremely violent phase, Des Roches Rosa called in a behaviorist. "A good behaviorist is purely there to analyze and understand and come up with positive solutions for behavioral issues," she explains.

    So what does Des Roches Rosa do when Leo's in the throes of aggressive or self-injurious behavior? "We have to consider safety first," she says. "We move away, we say very loudly and clearly, 'Stop' or 'No' and make it very clear with a very different, very strict tone of voice that what he's doing is not okay."

Something to Remember
"If you know one child with autism, you know one child with autism," says Dr. Fraga, referring to a popular saying within the autism community. She adds, "There is so much diversity in terms of how autism plays out with each child. The idea that everyone is the same is mythical." This uniqueness can be embraced as well as prepared for.

Julie Z. Rosenberg is a mom to two kids (one of whom has hemiparesis) and lives in Brooklyn, New York. She has written for ParentDish, New York Times' Motherlode and HuffPost Parents, and produced a monthly column on Park Slope Patch, called You Don't Know Jack, about navigating the complex world of being a special needs mom.

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Comments (16)
Pete Dragula, M.Ed., Doctoral Candidate
I am an Educational Specialist and work at a local high school with moderate/severe disabilities, ages 14-22. I've worked with students that have Autism for over 15 years. I counsel the parents of students with challenging behaviors and medical conditions to: 1. become experts in their disabilities by reading and attending seminars; 2. get organized and advocate for your children, because you are their ultimate and final advocate; 3. collect data on the behaviors and be flexible in teachable moments; 4. find highly preferred objects and activities and use these to negotiate appropriate behaviors; 5. practice and develop a communication system to address escalations; 6. use technology to develop opportunities for self advocacy, interaction and learning; 7. finally, learn to delegate and seek out resources.

Realize that eventually students will grow up and you will grow old. They will grow stronger and you will become weaker. The parent's goal should be to help provide structure, organization, expertise and advocacy for your child. Learn what works and doesn't. It is important to realize that you are your child's most important ally and only by learning everything you can and trying your best will your child have his/her best chances in developing independent and appropriate life skills. It is not an easy path, but realize that you are not alone and draw comfort from the support and facilitation you are providing to this special human being, who could be anyone of us at any time. Your child is lucky to have you as a parent, so don't be shy in seeking out answers and solutions....pace yourself. You may look back and realize how much your son and daughter have taught you over the years. Hang in there!
Posted: April 23, 2014 at 6:44 PM
grandma
We are in need of advice, we have a grandson who turned 14 this year. He hasADHD and is Bipolar and is Autistic , has been for a very long time.He is very smart in school but the last year has been disrespectful toward his mom, there are two other siblings in the home.out of control and he sees a physictrist and goes to a councillors.police have come to there home because he gets in his moms face Our daughter is married but not to his father ,I'm lost for words we try to give good loving advice but that is no help. I myself do not know all the pros and cons.I have to educate us as well.my grandson was so happy when he was young. Caring grandma
Posted: April 22, 2014 at 11:21 PM
bluebby
My foster child has been diagnosed with autism. He screams profanity, pees and defecates and makes lewd comments during his tantrums. His tantrums have lasted up to four hours. Is that typical of an autistic child or is that more of a behavior issue?
Posted: April 11, 2014 at 7:05 PM
val b
My 3 year old grandson has not been diagnosed yet.
He stays here very often, but oviusly I don't have custody. so I am unable to get him help I have a signed statement from my daughter as of 3 days ago saying I have permission to take him. can anyone help with where I can get him tested or any help I love him so much please any information or help would be apperciated
Posted: March 01, 2014 at 12:32 AM
jboo
My 3 year old has autism. She's very violent. I need assistance in a very bad way...resources would be very helpful. I'm disabled cardiac and in poor health.
Posted: February 26, 2014 at 9:05 PM
NicEliza
Barbara - sounds like your approach may work better for him. While It's documented that many kids with autism do better with strict schedules, in the last ten years I've worked closely (1:1) with more than 25 individuals with ASD between the ages of 3 and 21 (mostly 3-10), and of them only three - 3 in 25 - benefitted from a strict schedule (and in all 3 of those cases, a change in schedule is cause for a huge meltdown). Most did better with a looser schedule (first this, then this, then that) and some do not need pre-determined schedules at all (beyond stuff like "after lunch, we're going to the store, so finish up, ok?"). As the end of the article says, all kids with ASD are different, and if your grandson is having a harder time at home with his strict schedule, maybe it's a mistake for him to be on it, especially if he's feeling rushed with no way of handling transitions.
Posted: January 05, 2014 at 12:36 PM
scaredmommy
We just found out our 2 yr old has autism we r having a hard time getting him to sleep eat or calm down around certain ppl. He is violent towards his sister an me n his dad need help
Posted: December 05, 2013 at 9:21 PM
Gina S.
Barbara , most kids on the Autism Spectrum need a strict schedule. They live by it, that's the only way to keep them going.
Posted: February 21, 2013 at 4:18 PM
Roberta J.
I have a daughter with autism, developmental delays and is totally blind. When she was adopted at age 5 her autism had not taken hold. 1 1/2 years later you could see the difference. One thing you have to know is that it is time consuming, 24/7 care and you will break down. Just know that its ok, and you are human. But over the years I can tell you it is all about getting to know how that child functions. Also know that they pick up if you are frustrated, tired, sad etc. You have to have a network of help, you will not beable to do this by yourself and know that this to is ok. Tina does not like to be in a group, or interact with a bunch of people all the time. She would rather sit and listen to music. Or lay down and listen to music and that is fine. She will never be a rocket scientist or teach school so education is not important. Not having friends in the traditional sense is also ok. As long as she is happy it works for her. No, she is not at home being that her sister and brother are both middle schoolers and I must earn a living. We are now going through the process of finding the right placement. One that will allow her not to be drugged out and just have the time it takes to develop the ability to read her like a book. Change of caregivers, schedule, foods etc. can set her off into a major melt down. At this time it is unavoidable but hopefully we can come to a happy medium. There are very few organizations that deal with multi-disabilities. So, as a parent know that you must gleen information that will best help your child and situation. It is a never ending job but then so is parenthood and if you made that committment then just know you need to do it to the best of your ability. Know you are not alone!! Tina turned 21 last Friday and I can honestly say that I would do it all over again. Just looking at her and knowing that somewhere inside of that beautiful young woman is pure love. I have had to change my thinking and what I was taught in order to be a better parent to her. Don't think that the "experts" have all the answers--they don't. But appreciate that they are there and with technology we can find out more faster and ask for help quicker.
Posted: September 24, 2012 at 1:50 PM
Photo of Kelly C.
Kelly C.
I have a son with autism and Down syndrome. This is a very good article. And Heidi's post is also especially informative. It gives real life insight and practical advice. The bottom line is, when you have a child with autism, or care for a child with autism, you have to learn how to listen with things other than your ears, how to be a great detective, and willing to find new ways of doing things. Thanks for the article and to Heidi for wonderful comments.
Posted: May 05, 2012 at 8:19 AM
Photo of Helen L.
Helen L.
My grandson use to strike himself in the head with his hands constantly. I felt that since he wasn't able to speak that he was trying to communicate that something was wrong in his head area. I also notice that his eyes were behaving as though he was having a mild spasm. I began to massage his head on a regular basis and found gradual improvements in his behavior.
Posted: May 01, 2012 at 7:17 PM
Photo of Heidi Y.
Heidi Y.
I have been a nanny for twins who were diagnosed with PDD-NOS on the Autism spectrum. He was 23 months old and his sister wasn't diagnosed until 33 months.
It was my first experience with autism. I love these kids to pieces. We have been through nine months of intensive therapy at their home for nine months. Fortunately sessions worked better having her join in with her brother. When we heard her diagnosis I felt better that she had had the services despite not being a part of the programs we had for therapy. It was quite a learning experience. I took them to eye doctors, Dev. Medicine at Children's Hospital, their pediatrician, more eye doctors, and their were nine therapist coming to the house every day, M-F. We put up a whiteboard in the kitchen just to keep things organized. They were so fortunate to have good health care, great servics avaialble to them through Minuteman Arc, and one person to be with them through every moment of all of it. I think the most important thing I did and still do for them is to keep them calm and happy, on a fairly strict schedule, (less rigid now with therapy being over), and making sure they got plenty of rest at naptime and that they ate, unprocessed, fresh, healthy meals and beverages. Often it took alot of explaining to the parents and grandparents (who lived with them) but, gradually everyone started to see that the way that I did things made a big impact and helped to get the kids where they needed to be. I was always the disciplinarian at the house and the kids needed that. It helped them to understand what was expected of them. It made for much easier days for them...and for me. They are doing very well now. It was worth all the effort. Their issues have not completely gone away but, there are many less tantrums and/or meltdowns than there used to be. I had to learn what would cause one to come on and try and diffuse it beforehand. Really knowing these two made a difference. I spent 50-54 hours a week with them so it wasn't hard accomplishing that. The worst part is that their parents have minimal time with them. They are in denial to some degree still. When one or both of them are home they go off the wall. I hate seeing them like that. They do whatever they can to get their parents attention....in a negative way...its just aweful! They drag these two around on vacation or on weekends and overdo it. I see the aftwrmath every Monday morning when I have to try and get them back to "SANE" mode again. They often get sick or hurt because of this.
I hope this note helps others out there who are struggling with children on the autism spectrum, to one degree or another. These kids are beautiful, happy, funny and so often very misunderstood.

Thank you,
Heidi Yeadon
Marlborough, MA
Nanny
Posted: April 21, 2012 at 1:21 AM
Photo of Brenda S.
Brenda S.
I have a grandchild on the Autism spectrum. For some reason I can calm her down very easily!
When I am with her she also understands that getting dirty is part of the fun of playing!!!!
The worst part for the child is thinking everything has to be perfect:(
Posted: April 18, 2012 at 9:26 AM
Barbara K.
This was very helpful info. I have a Autistic Grandson, I keep things very low key with him he seems to do better at my house than in his own home. There they are on a tight schedule to fill every moment of the day with activity rushing to everything even eating. Lots of melt downs in his home.
Posted: April 13, 2012 at 4:00 PM
Vicki D.
autism in a child can be quite stressful'I have a lot of patience and understand until they get used to another care taker its hard on the child.
Posted: April 12, 2012 at 8:00 PM
Shonda F.
i have a son who is on spectrum. He is non verbal, but we are working on the getting PECs into his life. Life is challenging on all aspects of his life, but we are going to get through it. Not, saying that he will never have it, but hoping to eliminate some of the major daily challengs that prevents him, distracts him, and provokes him. I just want him to live the best possible life that he can and will be able to. It just such a shame and so mind bloggling that 1 out of 88 have autism. Parents. caregivers and providers must keep fighting the fight for the kids that are affected!
Posted: April 11, 2012 at 9:22 AM
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