The Pros and Cons of Hospice Care

What it is, where to find it, what to expect, and who will pay

What is Hospice Care?

Hospice care is generally for those who have six months or less to live. Care at this stage focuses on relieving symptoms rather than curing. The goal is to make the patient as comfortable as possible and to help prepare the patient and family for the patient's death.

Where Can I find Hospice Care?

Families can be referred to a hospice by a doctor or hospital, or they can find the nearest one on their own at the National Hospice and Palliative Care Organization web site or call National Hospice and Palliative Care Organization's Help Line at 800.568.8898.

What Can I Expect From Hospice Care?

Usually hospice personnel will come to your home to do an assessment and then provide the care in your home. It mainly consists of making the patient as comfortable as possible, and also includes conversations with the patient and the family to help them have meaningful and sustaining final interactions. Personnel include a team of social workers, therapists, clergy and volunteers, in addition to nurses and doctors.

Will I Be Able to Provide the Care My Loved One Needs At Home?

Hospice workers can train you to provide the care needed.

How Difficult Will the Final Six Months Be?

They can be increasingly difficult depending upon your loved one's illness. People handle the end stages of illness in different ways. It is usually necessary not to leave the patients alone as they become increasingly sick or weakened. Be aware that as their health deteriorates, they may experience changes in their mental status. Hospice can help you through this process, which can be just as difficult for the caregivers as it is for the person who is ill.

Who Pays?

Most insurance companies, Medicare and Medicaid cover the costs of hospice care.

Will I Need Special Equipment?

The hospice representative will assess what equipment is needed and help you arrange to get it. Much of the cost is covered by insurance.

Does Hospice Care End When My Loved One Dies?

Most hospices sponsor bereavement groups for family and friends and many periodically call family of the deceased to see how they are doing.

Pros of Hospice

  • Most patients prefer to die at home, without unnecessary interventions, and hospice care grants them this wish.
  • Hospice care usually succeeds in keeping patients pain free.
  • Acknowledging that the end of life is approaching gives family members and the patient an opportunity to come to terms with the death and to address unresolved emotional issues. Hospice workers are trained to facilitate this psychological process.

Cons of Hospice

  • The patient and family must acknowledge that the patient is dying, with less than six months to live.
  • Care now focuses on relieving symptoms rather than producing a cure.
  • Providing the care for your loved one can be emotionally difficult and exhausting, and may require you to give up other activities during this time period.

You need to decide if hospice care is right for you.

Resources

National Hospice and Palliative Care Organization

Paying for Hospice

Choosing a Hospice

More Senior Care Services

  • Call a Care.com Senior Care Advisor for assistance: 855-490-8679
  • Join in on Senior Care Conversations now! Read our informative Senior Care Blog.

Ronnie Friedland is an editor at Care.com. She has co-edited three books on parenting and interfaith family life.

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Comments (5)
Debra Blair
My father and mother are in hospice (both with terminal different kinds of cancer), however, one has has profound (!) dimentia... They both live in their home (and I live 5 minutes away)....I am there 3 to 4 times a day, even though we have finally hired 24/7 In Home Health Care...now all four shifts are AWAKE,since my mother's manic/frightening wanderings, falls, wanting to walk out the door etc...

Hospice aside, what is the best In-Home Health Care (we use to have 7 to 7 (12 hour home health care but now have reverted to LIVE-IN, meaning, someone awake and having to be aware (due to my mother) at all times.

This new care is going to cost us (projecting for a six month period for both aroud $600,000 a year....do you have any suggestions...

I could move in with them, however, I would be the first one to be taken to the hospital due to the stress and misery over the situation....I won't be able to survive it....any advise would be an absolute blessing...Thank you, Debra (the daughter)
Posted: December 20, 2011 at 10:20 PM
Jill M.
What a challenging time for you and your family, Debra. It is always a great idea to ask questions like you re doing before making any big decisions -- especially if they will impact your well being. We have Senior Care Advisors here at Care.com who can discuss your situation and the options available to you. Feel free to call us at 1-855-722-2730 Monday through Friday from 9 a.m. to 5 p.m. ET.
Take care,
Jill
Posted: December 22, 2011 at 3:36 PM
Jerri
My mother recently ran 103.6 fever and was on the gurney waiting for transport to the ER but they had to wait for the Hospice nurse to arrive. When he arrived, he diagnosed mom as having a urinary tract infection and convinced my sister who is POA to sign a refusal for paramedics to transport. She was then given antibiotics and put to bed and all is well, thank God. My problem is understanding why a doctor would recommend Hospice care to a patient who is perfectly healthy in all aspects other than Dementia. She is under 24/7, private home care. I am uncomfortable with the fact that Hospice doesn't want hospitals involved in their care of patients. My mother is NOT dying and hasn't been diagnosed as being 6 months or less from death, so why hospice? I think it is a wonderful organization for the dying, but she isn't at that stage yet. I'm very uncomfortable about someone telling my sister that 103.6 fever with a urinary tract infection, is normal. A nurse diagnosed my mother, not a doctor, and began treatment on something that could very well have been more serious. I also was told, by a hospice nurse, that if their patient dies in the hospital and not in a home, that they will not get their BONUS? This infuriates me! My son-in-law is also a Paramedic and deals with Hospice on a daily basis. His feelings are the same as mine, that they are a wonderful organization, BUT, seem to have more control than they need to have, when it comes to decisions like the one we recently experienced. We were told that she could be brought to the doctor for an examination but before that was done they had a "doctor" come in and examine her, left a report with no signature or contact number for questions. Does any of this sound normal to you? I want to be assured that this Hospice organization that is handling my mother is following procedure right. Thanks, Jerri
Posted: January 30, 2012 at 9:32 AM
Martha
My father joined hospice at the insistance of my sisters, POA, Rosemary Kelley and Anita Brady. He has renal failure but no distress. He is fully functional and not at the comfort only stage. He has had 24/7 care for years.

When he signed the papers, he unknowingly signed away all decision making to the POAs. He had to give up physical therapy and allow hospice and the POAs to decide when and if he can go to the doctors. Its now a struggle between sisters (POA and Non POA) to allow him to see the eye doctor to change his medicine. This not the only instance of struggle to see a doctor when treatment was required. Once in hospice, its self pay for these doctors.
Posted: February 05, 2012 at 4:23 PM
Rachel C.
My mom passed away 12-28-12, she was under hospice they made my life easier and made her comfortable...yes it's hard to hear that your loved can't go to the doctors or hospital it took me a few days to accept what they told me..anything I needed I had the next day or the same day..all her meds were taken care of....when the time came of her passing..they took care of everything....I love hospice.
Posted: January 10, 2013 at 11:42 PM
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